One of my best friends from High School has a daugher that was diagnosed with Cystic Fibrosis about a month after she was born. She is now 4 years old, and her name is Drae Nicole Featherstone. She is one amazing little human being and she is a FIGHTER!
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:
- clogs the lungs and leads to life-threatening lung infections; and
- obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
Drae Nicole - Age 4 - One of the many daily treatments at home.
Each year in May it is CF Awareness month. There are several things that the foundation puts on to help raise money for research, etc. to some day find a cure for this heartbreaking disease. Myself along with many friends and of course Suzie and Daniel’s (Drae’s parents) familes take part in as many things as we can and show our love and support for not only Drae, but for everyone that is affected by this illness. Being a mother myself now, I can’t even imagine what they must be going through fighting for her life each and every day.
I wanted to share a few of the things that I have taken part in this month to help support CF Awareness. There are only so many things that one can do, but just knowing that my little contributions here and there can help hopefully some day find a cure it makes me feel all warm and fuzzy, and that is the best feeling in the world!
On May 2nd at every Chili’s restaurant in Utah 15% of your bill cost went towards the Cystic Fibrosis foundation. I of course was excited for the chips and salsa, and also got my parent’s to partake in the fun. We made it a “take out” night at their house that evening. Very much worth the calories of those delicous tortilla chips and special salsa with a little dip of ranch for each bite. -
Chili's Take out to support CF Foundation on their fundraiser night.... Yumm!
Yesterday, May 16th, there was a bake sale sponsered by Discover Card, which is where both Suzie and her sister Sarah have worked for years. 100% of the procedes earned went towards the foundation. I was fortunate enough to be able to stop by and purchase some yummy goodness and say hello. I work just down the street from Discover, so it was an easy drive over for a great cause. My waistline may have though otherwise however….
Ironically though, yesterday Drae was admitted to Primary Children’s Hospital for an infection that was found in her lungs a few weeks ago during her routine check up. She went in for a surgical procedure called a Bronchio scope, as well as a “2 week clean out” in which a piccline is placed and she is given treatments to clean out her lungs and esophogus, etc. to see if they can clear out all the junk. She will be in the hospital for 2 weeks, as they keep her isolated away from any outside germs, allergies, etc. This espeically made my trip to the bake sale special, as she was in my thoughts and prayers a lot yesterday as she started this long process. Love that little lady!
Stopping by at the Bake Sale for some goodies.... Sarah (Suzie's sister) was there taking charge while Suzie was at the hospital with Drae. Love her!
Drae cuddling her Dad Daniel before she went in for her procedure yesterday.... such a little fighter!
Last but not least, is the Great Strides 5K walk/run. We have participated every year since Drae was born, and it is so amazing to see all the support and love from others. I look forward to it every year, and it is something that I’m able to do with my family to show our support together. The walk/run itself is tomorrow, May 17th, and Drae and her parents won’t be there this time around which will be bittersweet. I am so glad that I am able to be there with Danny and Cruz, our friends will be there, and all of their family, to all walk together for Drae and the many others out there affected.
To go along with the walk, a side note that the company that I work for, USANA Health Sciences, manufactures and distributes nutritional supplements. Some of these products are highly recommended by doctors for CF patients, and there are some that I personally know that use them daily. These products aren’t any you can buy in stores, or cheap by any means, but because I work here I am able to donate a basket for their big raffle that they do at the walk every year. Just another little thing that I’m so grateful I’m able to do and it feels great!
The girls and the kiddos at Great Strides 2012
The girls (Suzie is on the far right) at Great Strides 2011
USANA Product Basket I put together for the Great Strides Walk/Run Raffle
One day, and hopefully that day is soon, CF will not stand for Cystic Fibrosis…. it will stand for CURE FOUND! I personally am taking as many steps as I can to get that day closer.
Taking as many steps as I can to cure Cystic Fibrosis!